CNN
—
Whereas Celine Dion’s performing profession stays on maintain as she lives with stiff person syndrome, a uncommon neurological dysfunction, she is chronicling her journey in a brand new documentary titled “I Am: Celine Dion” and stays optimistic that she’ll at some point be capable to take the stage once more.
“This final couple of years has been such a problem for me, the journey from discovering my situation to studying how one can reside with and handle it, however to not let it outline me,” she wrote on her Instagram web page on Tuesday. “Because the street to resuming my performing profession continues, I’ve realized how a lot I’ve missed it, of having the ability to see my followers.”
She added that she wished to “doc” this a part of her life by means of her documentary, “to boost consciousness of this little-known situation, to assist others who share this analysis.”
Dion announced in December 2022 that she was taking time off from skilled commitments to concentrate on her well being after revealing her stiff particular person syndrome analysis. On the time, she stated the situation didn’t enable her “to sing the way in which I’m used to.”
Whereas she launched new music and appeared in a movie reverse Priyanka Chopra final 12 months, a supply near Dion informed CNN in late Could that she “will probably by no means tour once more.”
Stiff particular person syndrome is “a uncommon, progressive syndrome that impacts the nervous system, particularly the mind and spinal wire,” based on the National Institute of Neurological Disorders and Stroke.
“She’s doing every part to get better,” Dion’s older sister Claudette told Hey! Canada in September. “She’s a powerful lady.”
In line with an official synopsis, “I Am: Celine Dion” will give viewers an intimate look inside her life “as she reveals her battle with Stiff Particular person Syndrome (SPS) and the lengths she has gone to proceed performing for her beloved and constant followers.”
Capturing over a 12 months’s price of Dion’s life, together with “never-before-seen” non-public moments, the doc will showcase the legendary singer navigating “her journey towards dwelling an open and genuine life amidst sickness.”
“I Am: Celine Dion” might be directed by Oscar-winning director Irene Taylor and can stream on Prime Video, based on the information launch.